Community supports Milton Woman Battling Lyme Disease

By Christine Souders |

Published 04/27 2014 09:04PM

Updated 04/27 2014 09:12PM

BURLINGTON, VT- Did you know, Vermont is the second leading highest state in the U.S. for Lyme Disease, but it's also illegal to treat it in Vermont?

It's been a struggle for one Milton woman, but the generosity of friendly strangers on Sunday could help her become healthy once again.

22-year-old Carly Buswell found out she had neuro-lyme disease January of last year.

"I have neuro-lyme disease which we believe was from a tic. It's in my brain, it's in my organs, and it's in all my major joints. It's spreading to other organs, so we're having some complications with that," said Buswell.

Sunday, a fundraiser was held inside the burlington elks lodge to help finance her treatments.

30 vendors donated all the auction items

"They are here for me and they've never met me, and they are here to help me fight through this and help raise money for my treatments so I can get better."

Carly said the disease has disrupted her every day life

"You're depressed all the time because you can't do anything. You can't walk, you can't stand, I don't do anything anymore, so I want my life back."

Because she can't be treated in Vermont, it hasn't been easy financially either.

"My doctor's visits are anywhere between 4 to 800 dollars out of pocket. It's 680 mile round trip from my home in milton to wilton conn. Each drug varies whether or not my insurance company will cover it. There's a drug call Metpron and it can cost up to 22,000 dollars for 4 months of treatment."

And worse..."there's different strands of lyme disease and stages of lyme. I have the worst and i also have the co-infections. We have to find a drug that's going to cover that. The metpron would kill all three of the diseases, but it could also kill me because it's really aggressive and bag side effects. Is it worth going on it could kill me we don't know."

A bill is headed to the governor's desk to prevent the Vermont Health Department from penalizing doctors who prescribe long-term antibiotics.

Carly buswell said it's a light at the end of the tunnel.

"I just want to be able to go hiking, take my dogs for a walk, go to the beach, go fishing, go canoeing just have an active life, like I used to."

A change was made to the bill on Friday, requiring the Department of Health to report to the legislature about the spread of lyme disease in Vermont

Carly goes to Connecticut on Tuesday to learn about her treatment options.

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